Advocacy engagement: The role of information literacy skills.
P Nzomo, P Fehrmann - Journal of Information Literacy, 2020 - ERIC
… such as self-advocacy, social advocacy, patient advocacy, parent advocacy, and policy
advocacy, our paper examines what role IL skills play in making one an effective advocate. …
advocacy, our paper examines what role IL skills play in making one an effective advocate. …
The global role of patients, advocates and caregivers in rare diseases
M Nori, D Fisher-Vance, L Wuerth, R Colenso… - Future Rare …, 2023 - Future Medicine
… In response to this challenge, many patients, advocates and caregivers (PACs) have
established their own disease-specific advocacy and support groups to share knowledge and best …
established their own disease-specific advocacy and support groups to share knowledge and best …
FACES: An advocacy intervention for African American parents of children with autism
JN Pearson, H Meadan - Intellectual and developmental …, 2021 - meridian.allenpress.com
… Following approval from the institutional review board, participants were recruited through
community agencies and organizations (eg, parent support groups) in a large, Midwestern city…
community agencies and organizations (eg, parent support groups) in a large, Midwestern city…
Facebook Support Groups for Rare Pediatric Diseases: Quantitative Analysis and Cross-Sectional Study to Investigate Opportunities, Limitations, and Privacy …
SC Titgemeyer - 2022 - kups.ub.uni-koeln.de
… to a support group were more likely support group participants [20]. Therefore, health
professionals ought to get better acquainted with the topic of social media support groups if they …
professionals ought to get better acquainted with the topic of social media support groups if they …
Self-advocacy and advocacy
R Garbutt, AM Callus - Intellectual Disabilities-E-Book: Toward …, 2022 - books.google.com
… ’s role includes building up the skills of the members of the group and supporting the group
in … Self-help groups in Japan: historical development and current issues. International Journal …
in … Self-help groups in Japan: historical development and current issues. International Journal …
A blueprint for advocacy in neonatology
DK Hubbard, L Gievers, K Rao, JAF Zupancic… - …, 2022 - publications.aap.org
… (1) As neonatologists, we advocate for patients every day in the clinical care we provide;
however, there is an urgent need for us to move beyond problem-solving for individual patients …
however, there is an urgent need for us to move beyond problem-solving for individual patients …
Rare disease, rare information: Investigating healthcare information use in online global disability support groups
T Wang - 2022 - search.proquest.com
… in a lack of knowledge among medical and healthcare providers, resulting in delayed or no
… support groups, hospitals can establish digital platforms that provide systematic healthcare …
… support groups, hospitals can establish digital platforms that provide systematic healthcare …
Examining physician interactions with disease advocacy organizations
C Horrow, JE Pacyna, C Cosenza… - AJOB empirical …, 2019 - Taylor & Francis
… ,” or “Disease Advocacy Organizations.” For the purpose of this survey, we will use the
acronym “DAO” throughout to refer to all advocacy groups in general. …
acronym “DAO” throughout to refer to all advocacy groups in general. …
Ongoing Information and Support Needs of Parents of Children with Epilepsy
MC Secco - 2020 - search.proquest.com
… All attendance at ESWO programs including children’s programs and parent support
groups is entered into the client’s case file. Requests for school, healthcare and community-based …
groups is entered into the client’s case file. Requests for school, healthcare and community-based …
E-Learning Module and Parent Advocacy: A Qualitative Delphi Study
KA Mulvaney - 2021 - search.proquest.com
The problem that was addressed in this qualitative study is a lack of understanding of the
requirements for an online e-learning module on effective parent advocacy for 2e students who …
requirements for an online e-learning module on effective parent advocacy for 2e students who …